About us

About two years ago, a friend of mine began experiencing intermittent itching and sharp, excruciating pain. Despite numerous doctor visits, many diagnoses were initially considered, such as fungal infections or allergic reactions. Various treatments, including corticosteroid creams, did not succeed and sometimes even worsened the symptoms. In 2024, a dedicated young dermatologist was able to diagnose Wells Syndrome, also known as eosinophilic cellulitis. This diagnosis was a major shock, not only because there is currently no cure for this condition but also because it is extremely rare, affecting only a few hundred people worldwide.

As a close friend and paramedic, I tried to find as much information as possible about the condition to provide her with some guidance for the future. However, I quickly encountered a disappointment: due to the rarity of the condition, there is very little significant information or research available. Additionally, connecting with other affected individuals is challenging due to the lack of a dedicated community.

With my background in IT and online marketing, I aim to create a platform for exchange and information for all affected individuals, interested parties, doctors, and researchers. If you can support this project in any way, I would be grateful for your response.